SEPTEMBER 2015 – ADELAIDE

Hi again,

Have been having a few issues with side effects from chemo – I have Alimta (pemetrexed) chemo every 3 weeks and whilst not ideal, on the other hand, worry that I will have an allergic reaction bad enough to have to stop Alimta as I had with cisplatin/alimta combination.

I had a scan recently and the good news is that there is no new growth.  So of course asked the oncologist if I could have a rest from chemo as it does get you down.  His response was that whilst it is ultimately up to me, the danger is that once the disease becomes active and could move quickly, that having a rest could mean that the chemo may not work again.  So I said, bring it on, chemo it is!  In the wise words of someone somewhere – If it ain’t broke, don’t fix it.

I just have to keep in mind now lucky I am to be here nearly 8 years after diagnosis and still have a great life!

Every Mesowarrior’s friend Lou, is doing such a great job of keeping mesotheiioma in the media, and the petition she has started to put Keytruda on the PBS for mesothelioma is admirable (everyone should sign the petition).  It’s really great to see that she is doing so well on Keytruda, especially as she came from being a few weeks away from death – now is looking good!

Love & light to everyone,

Lorraine